Some pictures and a memory from the archives.
He was covered in red spots which were rapidly swelling and growing. The doctor switched his antibiotic and sent us home. Friday morning Whit was worse, with well more than half of his body covered in hives. I went back to the doctor who diagnosed Whit with Stephens-Johnson syndrome. My wonderful, relaxed, calm doctor told me that it was best to think of the syndrome as a spectrum. On one side, he said, is a “mild rash.” “And on the other?” I asked, obviously. “Um, well, death.” Great. Thanks. He sent us to the Children’s Hospital ER.
When released from Children’s around noon on the 24th I thought Whit was improving. He had shown no appetite at all and had barely taken any formula. He seemed quiet and listless but not unhappy. As I got the children ready for Christmas Eve dinner at my parents, he threw up violently. I paged the pediatrician’s office, nervous about bothering them on December 24th. One of the other two pediatricians in the practice, not my own, called me back. She told me to watch him, to give him pedialyte in whatever way possible (turned out that the baby Motrin syringe was the only way) and to call back immediately if he threw up again. He was at this point running a fever of about 100 and was about 80% covered in raised red welts.
At my parents’ house that evening I was preoccupied and nervous. I kept injecting his mouth with teaspoonsful of pedialyte, one at a time. He was quiet, almost unnervingly so. Around 7, as everyone prepared to sit down, I took him to my parents’ bedroom to change his diaper. He threw up all over me. I called the doctor as advised and she told me to go immediately to the Children’s ER.
Hilary came with me and Matt stayed with Grace. I drove like a bat out of hell. The Children’s Hospital ER on Christmas Eve? Pretty close to how I imagine Calcutta. Let’s just say we were not the only people there. If you need attention in this kind of setting, just throw out Stephens-Johnson syndrome. The seas parted and they took us immediately to a room. Whit was put back into his third hospital johnny in two days and they decided to start an IV. No easy feat with a very dehydrated baby.
I consider myself a fairly unsqueamish person, and have watched my children endure all kinds of injuries, have personally held Grace down while she got stitches in her face, etc. But this was too much for me. After they had tried unsuccessfully four times to insert his IV I had to leave the room. Hilary stayed with him. They finally got the IV into him and he spent most of his first Christmas Eve at Children’s Hospital.